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Comment on Blogs, HHS, and the Coming National Debate on Health Care Reform by Learning by Doing: Technology in the 2008 Election | Information Therapy (Ix) Blog

Sun, 03 Aug 2008 22:17:06 +0000

[…] blogged last week about the insights Secretary Leavitt shared at the Kaiser Family Foundation forum on the health blogosphere. I noted some of what he had learned from his year of […]

Comment on 2.0 Strategies–Lots of Use, but a Long Way to Go in Satisfaction by Judy Feder

Judy Feder — Fri, 01 Aug 2008 15:05:23 +0000

Josh, we’re in the midst of data analysis, but I will certainly post highlights ASAP.
Thanks,
Judy

Comment on 2.0 Strategies–Lots of Use, but a Long Way to Go in Satisfaction by Josh Seidman

Josh Seidman — Thu, 31 Jul 2008 18:13:40 +0000

Interesting reactions…

Can you share here or point me in the direction of your new research that you reference above? That sounds like an important contribution to this field.

Comment on 2.0 Strategies–Lots of Use, but a Long Way to Go in Satisfaction by Judy Feder

Judy Feder — Thu, 31 Jul 2008 18:06:12 +0000

I really hope they don’t squander the opportunity — but I think they may “cautious” it away. I had the opportunity to talk to virtually all of the marketing heads of the National Comprehensive Cancer Network about this last March. They may not have been the right people within the organization. Regardless, there was enormous enthusiasm for online community, but much trepidation, too. Would people criticize docs online? Would they post false or inaccurate information? Online communities are great, but “we’re probably a year or two away from implementing one…”
Regarding the data on trust of one’s own physician/point of care, I think that’s very likely true. At the same time, I just did some primary research in collaboration with Bret Shaw (U of Wisconsin) and Andrea Meier (UNC). We got a number of interesting verbatim comments from respondents who were really eager to have access to experts at other institutions online.

Comment on 2.0 Strategies–Lots of Use, but a Long Way to Go in Satisfaction by Josh Seidman

Josh Seidman — Thu, 31 Jul 2008 17:02:51 +0000

Judy,
Although I don’t think it’s limited to the former, that was my intention in the statement above. But, also, my point here is not that other health care organizations can’t host/develop/promote social networks. In some ways, it’s just the opposite. All kinds of health care organizations certainly will fill the void (because a real need exists) if the providers/delivery systems don’t step up to the plate in this arena.
The thing is (and I just saw more data on this today) that consumers intrinsically most trust their own providers (clinicians and hospitals), so they have the best opportunity to create the most valuable Health 2.0 tools. Let’s hope they don’t squander that opportunity.
What do you think?

Comment on 2.0 Strategies–Lots of Use, but a Long Way to Go in Satisfaction by Judy Feder

Judy Feder — Thu, 31 Jul 2008 15:55:43 +0000

Josh, for what it’s worth, one of the pharmaceutical trade rags published a year-end 2007 “in and out” list that said that 2008 would be the year of online social networking. My question to you is: when you refer to health-care organizations, are do you mean hospitals, advocacy orgs, etc., or do pharma companies get a chance to prove if they can really be transparent enough to host a true social network? I don’t know the answer to that, but I do agree fervently that patient online communities are essential to both the economic and quality of care future of health-care. Thanks for the McKinsey stats.

Comment on Blogs, HHS, and the Coming National Debate on Health Care Reform by Josh Seidman

Josh Seidman — Wed, 30 Jul 2008 17:27:37 +0000

Susannah,

Thanks for your insights and data. It’s always a tough balance to figure out the relative importance of generating new data/research versus putting more time into the methodical and creative approaches to weaving it into the national consciousness.

As yesterday’s forum and your data above suggest, these new approaches likely will be critical to what happens both in the 2008 election and the policy & political debates that result from it in 2009 (and beyond).

Comment on Blogs, HHS, and the Coming National Debate on Health Care Reform by Susannah Fox

Susannah Fox — Wed, 30 Jul 2008 17:07:31 +0000

I really appreciate this summary of Sec. Leavitt’s talk since I was stuck in a website redesign meeting where we were discussing - yes! - the power of social media to get our data into the public conversation about the internet’s impact on society.

I took this year off from research to help direct the Pew Internet Project’s site redesign, but decided to keep my hand in the game by contributing to the e-patients.net blog. I think I’ve become a better researcher for taking that break from number-crunching. And I’m seeing our data pop up in more places b/c I’m part of the conversation online.

Also, to Sec. Leavitt’s point about taking a short cut, communicating directly with the public: our latest political polling finds that Americans are embracing this opportunity. 39% of internet users (29% of all adults) have gone online to read or watch “unfiltered” campaign material, which includes candidate debates, speeches/announcements, position papers, and speech transcripts. (See: The Internet and the 2008 Election

Comment on Truly Understanding Consumers’ Needs…Some Lessons in “Genchi Genbutsu” by Representing “Consumers” in Health Care | Information Therapy (Ix) Blog

Thu, 24 Jul 2008 20:25:01 +0000

[…] patients and clinicians, observing how they interacted, and what affected their communication. As I described in a post last year, this is an approach taken by some of the most successful companies on the planet (e.g., Toyota […]

Comment on PCHIT Initiative Implications for Health Literacy by Disabled Chat

Disabled Chat — Thu, 24 Jul 2008 16:37:38 +0000

I have Bell’s Palsy and enjoy your blog very much. First time I’ve commented, but have been reading here and there.
Great blog. I enjoy reading it every chance I get and value your opinions!